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Monday, June 26, 2006

The Story Of 65 Roses


By Dan Moran

This is way off topic, but I hope once you’ve read this that you’ll understand and forgive the brief detour…

If you’ve had children of your own, then you know the joy that you can get only from holding a baby in your arms, looking on her angelic face and thinking about the wonderous future ahead for this new little person you’ve helped bring into the world.

But imagine how your life would change if shortly after she was born, you found out that this innocent, helpless child had a life threatening disease that had no cure and which so devastates it’s victims that few make it to the age of 35.

Well, a few years ago, some friends of mine were hit with this most unwelcome news. Their first child, a beautiful little baby boy, was diagnosed with Cystic Fibrosis, a genetic disorder that has no cure.

But rather than play “victim” and let the disease run their lives and the life of their son, these brave parents met the challenge head on. They learned everything there was to know about the illness, including the latest treatments and therapies.

Normally, a child diagnosed with CF faces stunted growth, frequent illnesses and numerous hospital stays every year. But this particular little boy, who is now a healthy and happy 4 years old, is within the size and weight norms for his age, is rarely sick, and has been hospitalized only a couple of times.

This is because of the dedication and committment of his parents to do whatever it takes to make sure their son’s childhood is as normal and as happy as possible. But it is also because his parents have the support of family, friends and one incredible organization, the Cystic Fibrosis Foundation:

http://www.cff.org

CFF’s mission is to find new treatments and eventually a cure for this debilitating disease. The work of organizations like CFF has led to an increase in the life expectancy of CF patients from about 16 years to over 32 years. And they are finding new treatments and therapies every day to reduce the number of illnesses and hospital stays CF patients must endure.

Just as important, the CF Foundation is there to support and educate the parents and families of those with CF to make sure they are equipped mentally and emotionally to deal with the daily rigors of caring for their loved ones.

It is with a personal understanding of how important their work is that I ask you to consider donating to the Cystic Fibrosis Foundation. Your gift will help them continue the work of helping families in need, developing new treatments and therapies and eventually of finding a cure for this dread disease.

Please visit the CFF website for more information about the work they do and to make your donation:

http://www.cff.org

Thanks for reading this. Now, go hug your children!

- Dan

(Dan Moran is the creator and owner of BetterTextAds)

PS: So, what does any of this have to do with “65 roses?” You can find the full story here:

2 Comments:

  • At 8:21 AM, Blogger deodorantlp said…

    I was looking for something else when I found your blog.Anyway I found it very helpful.You may visit my new Perfumes blog if you like.

     
  • At 2:24 PM, Blogger mommy said…

    When I was pregnant with my first son, I had the obligatory genetic screenings done and we learned that I was a carrier of a CF gene. The next step was to test my husband, and I was told that he would very likely NOT have a CF gene, and I shouldn't worry.

    But, he did.

    So then we had to be tested to see if we had a pair each. It was a very trying, emotional, and difficult time, waiting for those results to come back.

    Thankfully, while we both carry a CF gene, we don't have the pair necessary to make CF a risk for children we have.

    However, because of this experience, we did our research and learned a great deal about CF, and now it is our chosen cause/charity and we donate on a regular basis.

    Thank you for your post on CF. It's so important to get out the word.

     

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